In April 2018, I began experiencing extreme fatigue, which you can’t shake off with good sleep and rest. Recognizing the unusual nature of my exhaustion, I decided to consult my doctor. I had a history of Vitamin D and Vitamin B12 deficiencies, which can contribute to feelings of extreme tiredness. My doctor conducted a series of tests, including a Complete Blood Count (CBC), Vitamin D, and Vitamin B12 lab work. Within a few days, I received a call from the doctor’s office, informing me that my White Blood Cell (WBC) count was alarmingly high, around 23,000, well above the normal range of 4,000 to 10,000. Subsequently, my doctor ordered additional tests to investigate whether an underlying infection might be causing this elevated WBC count. Surprisingly, all the tests returned within the normal range, leaving my medical team and me puzzled. It was then that my doctor suggested I consult a hematologist without delay. The hematologist conducted a series of tests as well but could not identify any infections or other underlying factors responsible for the elevated WBC count. Faced with this mystery, he recommended a Bone Marrow biopsy, a procedure that could potentially shed light on the situation. This biopsy was performed as an outpatient procedure.
Three weeks later, I had an appointment with my hematologist. Given that my family and I had just returned from an extended vacation, I went to this appointment on my own to discuss the test results. During our meeting, my hematologist said I had been diagnosed with Chronic Myeloid Leukemia (CML). This condition arises from a genetic translocation, specifically between chromosome 9 and chromosome 22, known as t (9;22). This translocation results in the fusion of segments from the ABL1 gene on chromosome 9 and the BCR gene on chromosome 22, creating an abnormal fusion gene called BCR-ABL1.
Upon hearing this news, I was overcome with numbness. My hematologist, who had now taken on the role of my oncologist, reassured me that although CML is a form of blood cancer, it can be effectively managed with a prescription medication called Tyrosine kinase inhibitors (TKI). Thankfully, I wouldn’t need to undergo chemotherapy or radiation treatments and could continue living a “new” normal life. It is important to note that TKIs function like a targeted weapon, continuously battling cancerous cells. While they don’t offer a cure, these daily pills act as lifelines. I would need to take this daily medication for the rest of my life, as it is vital in preserving my well-being. This daily pill is keeping me alive.
The TKI medication Dasatinib, known by its generic name Sprycel, carries various side effects such as fatigue, body pain, hair loss and thinning, and weakened immunity. Additionally, it can impact the heart, kidneys, and liver. I have regular tests to ensure the medication does not affect my heart, kidney, and liver. Among the side effects, I mainly struggle with fatigue, body pain, and hair loss/thinning. I manage these challenges by incorporating daily walks of 10,000 steps whenever possible, maintaining a positive mindset, and surrounding myself with uplifting and supportive individuals. I am incredibly fortunate to have a remarkable husband named Shree, who has been my unwavering support. He accompanies me to every appointment, every blood draw, and even during iron infusions when necessary. My beautiful daughter also navigates this journey with me, providing invaluable support. Additionally, I have a fantastic sister, brother-in-law, niece, and nephew who play essential roles in my support system. Both my parents and in-laws have shown remarkable courage and strength throughout this experience, further bolstering my support network. In Austin, my friends have been a source of love and support, contributing significantly to my overall well-being. One of my friends,
Brinda, battling Triple Negative Breast Cancer, is a significant source of inspiration in this shared journey.
I’m employed full-time, and this commitment has kept me engaged and productive. I’m fortunate to have a fantastic boss aware of my health condition. I’m determined not to define myself solely as someone dealing with an illness. Thankfully, I don’t experience symptoms all the time. I have good days, and then some days aren’t as great. I’ve learned to embrace this reality and take it easy when I’m not feeling at my best.
As women, we often prioritize others over our own well-being, ignoring the signals our bodies send us. My message to all women is not to accept chronic fatigue and persistent lethargy as a way of life. It’s crucial to consult with your doctor and become your own advocate. I strongly encourage both men and women to prioritize regular annual checkups. For women, mammograms and pap smears should be part of this routine. Men should also actively support women, such as wives, mothers, sisters, and friends, by encouraging them to undergo these annual checkups and mammogram screenings. Cancer should not be a taboo topic or treated as a hidden secret. Open discussions about it are not only empowering but also much-needed for raising awareness and promoting early detection.
The most significant lesson I’ve gained is the importance of staying attuned to our bodies and addressing any concerns, regardless of their size. Maintaining a positive and happy mindset is essential. Additionally, companies must establish support systems for employees facing such challenges. Sometimes, families may require therapy to navigate the complexities of cancer together. There should be no shame in reaching out and seeking help, as therapy can provide individuals with the tools they need to cope and thrive during challenging times.
Don’t be afraid to see a doctor; contemporary treatments empower us to enhance our quality of life and longevity, especially when we actively advocate for our own well-being.
Breast Cancer Journey 